Tuesday, May 18, 2010
Wednesday, March 17, 2010
Assistive technology is a broad term that includes a wide range of devices that make it easier for individuals with disabilities to perform certain tasks. Examples include wheelchairs, orthotics, communication devices, computers, software, adapted utensils, dressing aides, large print materials, and even Velcro. In general, AT that is medically necessary is called Durable Medical Equipment (DME). Some AT is very expensive and many families will require financial assistance to purchase it. Here are eight ideas for funding the AT your child needs to succeed in school, community, and family life.
Read the full article online: FCSN's Winter Newsletter.
Cute photo right - cute kid, cute cat. What's the big deal? Well, it actually is a big deal to us. Our son has cerebral palsy which impacts his motor coordination and makes it harder for him to move independently. He does crawl but he was not able to get onto a seat without assistance until Ozzy, our rescue kitty, found a comfy perch on the cushions. Ozzy, it turns out, has been is a huge motivator for Graham. Graham crawls around from room to room chasing the cat and figured out how to get himself onto the couch - by himself- to pet the cat. Clearly this is a skill he had been practicing in PT at school but he put that skill into practice to get to something he really wanted - a fuzzy kitty. Proof once again that good motivators are so key to getting our kids to learn and act. My husband and I are still surprized when we find Graham sitting on the couch with a book. Now if only we could get Ozzy more motivated to return the enthusiasm....
Sunday, February 14, 2010
Graham (soon to be 14!) is too long to fit in a kids sled but he does enjoy the outdoors, especially if speed is involved. Recently Outdoor Access offered an adapted kick sled program near our home. What's that you say? Kick sleds are used for transporation throughout Scandanavia and are are available here in the US from several companies. They are light weight, portable and can be modified pretty easily for individuals who need more support. The sled we tried was modified with a spare wheelchair seat back that provided some lateral support. A foldable camp seat works well too. With a little help from Dad in the rear, off we went! It steers pretty easily and cruises. And yes, I played husky for my daughter. It was a good work out but the rosy cheeks and smiles were worth it.
For more info about Outdoor Access contact Brenda K Davies, OTR/L, 413-259-0009.
For more info about outdoor adapted recreation in Massachusetts and beyond, see the great blog http://www.everyoneoutdoors.blogspot.com/ by Marcy Marchello, Universal Access Program Coordinator at the Massachusetts Dept. of Conservation and Recreation.
Friday, January 15, 2010
Before the earthquake at Wings of Hope, there was no running water and only 2 hours of electricity per day. And this is considered the finest program in Haiti for children with special needs! In addition, all of the children were abandoned and live at Wings of Hope their entire lives. All without government support.
Your donation is vital to helping them rebuild. You can help make Wings of Hope even stronger by donating on-line to http://www.heartswithhaiti.org/ (a 501c3 organization). All the funds go to support the rebuilding effort. If you would rather send a check, please make it payable to: Hearts with Haiti and mail it to 11503 Springfield Pike, Cincinnati, OH 45246. Please enclose a note saying the money is for the Wings of Hope school. Thanks for your support.
For more info and updates about the Wings of Hope School, see http://www.heartswithhaiti.org/
Here's a chance to do two great things with your kids: donate to a good cause, and gobble up some ice cream. Friendly's restaurants have started their annual Cones for Kids campaign to benefit Easter Seals camps for children with disabilities. Make a dollar donation now through February 13, and in addition to helping kids have a fun camp experience, you'll get five Valentine cards good for free ice cream cones, plus a $5 off coupon toward a purchase of $25 or more. It's not cheating on your diet if it's for a good cause, right?
More info from Easter Seals and Friendly's
REPOSTED FROM Terri Mauro, About.com: Parenting Special Needs
Wednesday, January 6, 2010
This is a short poem about chance, hope, reality and love.
A Different Kind of Lottery
one in a million
a different kind of lottery
million dollar smile
body under construction
pure luck, pure love
our blood, our love
light as a feather
big arms around
this eternal treasure
million dollar smile
A guest post by Pete Sargent, my husband and dad to Graham who has cerebral palsy. Thank you. Still rivers run deep.