Stray Thoughts About Motivators

Cute photo right - cute kid, cute cat. What's the big deal? Well, it actually is a big deal to us. Our son has cerebral palsy which impacts his motor coordination and makes it harder for him to move independently. He does crawl but he was not able to get onto a seat without assistance until Ozzy, our rescue kitty, found a comfy perch on the cushions. Ozzy, it turns out, has been is a huge motivator for Graham. Graham crawls around from room to room chasing the cat and figured out how to get himself onto the couch - by himself- to pet the cat. Clearly this is a skill he had been practicing in PT at school but he put that skill into practice to get to something he really wanted - a fuzzy kitty. Proof once again that good motivators are so key to getting our kids to learn and act. My husband and I are still surprized when we find Graham sitting on the couch with a book.  Now if only we could get Ozzy more motivated to return the enthusiasm....

Uphill (and Downhill) All the Way

When you live in New England, the cold winter is FAR more enjoyable if you embrace the outdoors. And we try to do that. My son and husband are an adapted downhill skiing team with New England Handicapped Sports Association located at Mount Sunapee in NH. But this year we all tried something new - adapted kick sledding.

Graham (soon to be 14!) is too long to fit in a kids sled but he does enjoy the outdoors, especially if speed is involved. Recently Outdoor Access offered an adapted kick sled program near our home. What's that you say? Kick sleds are used for transporation throughout Scandanavia and are are available here in the US from several companies. They are light weight, portable and can be modified pretty easily for individuals who need more support. The sled we tried was modified with a spare wheelchair seat back that provided some lateral support. A foldable camp seat works well too. With a little help from Dad in the rear, off we went! It steers pretty easily and cruises. And yes, I played husky for my daughter. It was a good work out but the rosy cheeks and smiles were worth it.

For more info about Outdoor Access contact Brenda K Davies, OTR/L, 413-259-0009.

For more info about outdoor adapted recreation in Massachusetts and beyond, see the great blog http://www.everyoneoutdoors.blogspot.com/ by Marcy Marchello, Universal Access Program Coordinator at the Massachusetts Dept. of Conservation and Recreation.  

Support Children with Special Needs in Haiti

The Cotting School here in Massachusetts, one of the oldest private schools for children with disabilities, asks for your support of their sister school, Wings of Hope, based in Port au Prince, Haiti. While their school building was severely damaged, fortunately all the students and staff are alive.

Before the earthquake at Wings of Hope, there was no running water and only 2 hours of electricity per day. And this is considered the finest program in Haiti for children with special needs! In addition, all of the children were abandoned and live at Wings of Hope their entire lives. All without government support.

Your donation is vital to helping them rebuild. You can help make Wings of Hope even stronger by donating on-line to http://www.heartswithhaiti.org/ (a 501c3 organization). All the funds go to support the rebuilding effort. If you would rather send a check, please make it payable to: Hearts with Haiti and mail it to 11503 Springfield Pike, Cincinnati, OH 45246. Please enclose a note saying the money is for the Wings of Hope school. Thanks for your support.

For more info and updates about the Wings of Hope School, see http://www.heartswithhaiti.org/

Cones for Kids with Special Needs

Here's a chance to do two great things with your kids: donate to a good cause, and gobble up some ice cream. Friendly's restaurants have started their annual Cones for Kids campaign to benefit Easter Seals camps for children with disabilities. Make a dollar donation now through February 13, and in addition to helping kids have a fun camp experience, you'll get five Valentine cards good for free ice cream cones, plus a $5 off coupon toward a purchase of $25 or more. It's not cheating on your diet if it's for a good cause, right?

More info from Easter Seals and Friendly's
http://www.easterseals.com/site/PageServer?pagename=ntl_friendlys

REPOSTED FROM Terri Mauro, About.com: Parenting Special Needs

A Short Poem

This is a short poem about chance, hope, reality and love.

A Different Kind of Lottery

one in a million

a different kind of lottery

grand prize

million dollar smile

exquisite soul

body under construction

pure luck, pure love

our blood, our love

light as a feather

big arms around

this eternal treasure

million dollar smile

winners forever

A guest post by Pete Sargent, my husband and dad to Graham who has cerebral palsy. Thank you. Still rivers run deep.

Poking Fun at Disability Awareness

It's ok to make light of disabilities when you live with them. And why not? There are plenty of people who do and say stupider things about disabilities out of ignorance everyday. For grins and dose of irreverance, take a peak at some of the disaiblity awareness gift items created by individuals with disabilites and their families available at CafePress.com.

If you haven't been there before, CafePress.com is an e-commerce web site where you can upload your own artwork and it's printed on demand on t-shirts, mugs, bumper stickers, pins and more. Disability topics cover everythings from autism to epilepsy to rare syndromes. Search for the term "wheelchair" and you'll see some pretty racy slogans created by and for wheelchair users. MANY NOT FOR KIDS!

While you're there, check out my Say it with Symbols Gift Shop at CafePress. You'll find appreciation gifts for teachers and therapists as well as awareness-building t-shirts for children and families who communicate with picture symbols. Certainly less racy than some topics, but the message is equally as important.

www.CafePress.com/SayitwithSymbol

Adapted Gloves?

I came across these "adapted" gloves at a local shop and thought I would share. It's always a challenge to get gloves on my son; his fingers just don't want to separate and cooperate! And mittens are too baby-ish for a middle-schooler. Check out these fuzzy Wristies! - fleecy gloves without fingers! They come in lots of colors and lengths for kids and adults. I spoke with the owner Susan and she offered to give parents a discount off any order placed online at www.wristies.com if they would help our kids.

Use the code SPECIAL-KIDS to receive 10% off your entire order. Use the "APPLY" button to get the discount. This code is good through Dec .31 but she said the best selection is available early in the season. I think these are great and so easy to get on. And my kids think they are pretty cool too!

Check them out at http://www.wristies.com/