Friday, August 21, 2009

Have's and Have Not's

I keep a mental inventory of all the thing that I love about my son despite his special needs and challenges. Here's my list of his have's and have not's:

He has:
  • thick hair and long eyelashes any woman would die for
  • baby smooth skin without a blemish
  • a long, lanky physique and looks great in clothes
  • an infectious smile and great teeth (says his dentist!)
  • a sweet and gentle disposition
  • the patience of a saint, which makes him an excellent shopping buddy!
  • an enduring love of books and could be read to 24 hours a day
  • an affinity for pirates, knights and swords
  • a love of watermelon and other things juicy
  • excellent health
  • a "diagnosis" of static encephalopathy or cerebral palsy
  • an accessible home, where he can crawl from one end of the house to the other - and he does!
  • five wheelchairs and strollers (more to come about this)
  • excellent driving skills; manages a 400+ lb. power chair with finesse and caution
  • dozens of communication choice boards and low tech devices to help him "speak"
  • the ability to feed himself, most of the time
  • new skills; such as drinking from a straw, getting up onto the couch by himself :-)
  • braces and orthotics in a variety of shapes and sizes
  • avoidance behaviors
  • managed his drooling with help from medication
  • sensitivities to certain smell and loud noises
  • a dedicated team of teachers, therapists and other educators
  • doubled-up health insurance coverage
  • grandparents who love him
  • a sister who makes him laugh
  • a dad who would feed him and bathe him until he is 100 years old
  • a mom with a sore back.
He does not have:
  • the ability to walk independently
  • the ability to talk independently
  • the ability to eat ice cream without help
  • essential skills such as reading, spelling or addition
  • ability to dress himself but can choose this clothes (preferably sweats)
  • interest in sports or girls (yet)
  • an inappropriate IEP
  • temper tantrums
  • aggressive behaviors
  • stamina (he still benefits from a nap)
  • gastrointestinal problems or food allergies
  • seizures
  • sleep problems
  • an autism spectrum disorder
  • a compassionate and sensitive sibling
  • friends.
The have's exceed the have not's!  Try this yourself!

1 comment:

  1. Your list made me smile! Especially the part about a love of pirates. My friends and I play pirates at local renaissance faires. Does he ever visit these?