Every one has heard about the facts about autism these days. It's in the main stream press, on the politcal agenda and and all over the web. Research says 1 in every 100-150 children receives a diagnosis of an autism spectrum disorder. But have you heard about the thousands of children with undiagnosed disabilities? What you ask? - with all the excellent hospitals, research and genetic testing now available? There are non-profit support organizations, list servs, blogs and more out there to support parents like us and our snowflake kids. But kids like my son rarely make the news (and then only the sensational tabloids) and there aren't enormous fundraising machines supporting wide scale research, or lobbying groups pushing for legislation and class action law suits. We struggle along trying to do the best for our needy kids and our families.
Occasionally family members and friends ask if our son has autism because he did not look them in the eye or occasionally does some repetitive act. No, I say, he has a developmental disability and like autism, our kids may become over stimulated and do not adapt to social norms. Sometimes it would be easier to say yes, he does have autism and not have to explain it all.